The State of Learning Disabilities: A New Report

Advocacy report on learning disabilities - awareness

This report, from the National Center for Learning Disabilities, is now available for reading and can be downloaded.

The National Center for Learning Disabilities, a leading advocacy group, just came out with a report, The State of Learning Disabilities: Understanding the 1 in 5. That figure, one in five, or 20 percent, refers to the number of students who have a learning disability, such as attention deficit/hyperactivity disorder (ADHD) or dyslexia. This population is very much misunderstood; all too often, these children are (mis)labeled as lazy or unmotivated or just not as smart as their peers. More often than not, these labels are untrue. Not only are these students at risk of failing school, but also they all too often struggle finding or keeping employment and are disproportionately represented in the prison population.

Despite one in five students having some sort of learning disability, according to this report, only one in 16 receive proper special-education services with an Individualized Education Plan (IEP) and only one in 50 receive services under Section 504.  This detailed report covers the following:

  • The neuroscience, stigma, and federal laws concerning these students
  • How to identify struggling students
  • Supporting academic success
  • The social, emotional, and behavioral challenges these students face and pose
  • Issues regarding the transitioning to life after high school
  • Recommended policies.

The report provides summaries for each state, with “key data points and comparisons to national averages in several areas such as inclusion in general education classrooms, disciplinary incidents and dropout rates for students with learning and attention issues.”

The bibliographic citation for this report is:

Horowitz, S. H., Rawe, J., & Whittaker, M. C. (2017). The State of Learning Disabilities: Understanding the 1 in 5. New York: National Center for Learning Disabilities.

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Our Most Notable and Favorite Disability Articles for the Week Ending April 7, 2017

Our Most Notable and Favorite Disability Articles for the Week Ending April 7, 2017

Autism Spectrum

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Most autistic self-advocates prefer variants on the spectrum infinity symbol over the puzzle piece, especially the blue one.

At Advancing Opportunities, we excel in providing residential and respite services to people of with all disabilities, along with advocacy and education services for parents and guardians and assistive technology support. As a leader in the field, we are pleased to share our experience, knowledge, and expertise with the disability community through our social media outlets: Facebook, Twitter, Google+, LinkedIn, YouTube, and Pinterest. In our Disability and Ability Highlights of the Week column, we will select the best of what we found and shared and present them. Please click on the titles with embedded links to find the full article.

Please stop by our website, http://advopps.org/, and find out all we have to offer. In addition, we are specialists in the area of assistive technology and offer a huge array of services; the Assistive Technology Center is New Jersey’s premier source of information and equipment.

 

 

Advancing Opportunities job announcement of the week:

We’re hiring!

Advancing Opportunities has immediate openings for part-time Direct-Support Professionals in residential care programs throughout New Jersey. In April, we will be holding job fairs on the following days, from 10:00 a.m. to 3:00 p.m., as follows:
dv1954021

  • Tuesday, April 11. Budd Lake.
  • Advancing Opportunities, 98 U.S. Hwy. 46 W., Budd Lake, NJ
  • Thursday, April 20. Parsippany. Family Resource Network, 322 U.S. Hwy. 46 W., Ste. 290, Parsippany, NJ
  • Tuesday, April 25. Marlboro. Marlboro Free Public Library, 1 Library Ct., Marlboro, NJ

Advancing Opportunities provides supports to individuals with disabilities and their families, so they can live fully in the community.

Our team includes a diverse collection of men and women committed to treating the people and families we serve with dignity and respect and providing the highest quality services and supports.

Employees of the agency enjoy paid training and an excellent array of benefits, including health care and dental benefits for all eligible full-time staff and a 401(k) retirement plan for all eligible employees.

If you are unable to make it to one of the job fair open houses, you can also visit us online, at: http://advopps.org/careers/

 

 

Advancing Opportunities news:

Mark your calendars for Saturday, April 22, 2017! It’s only a month away. Come and plan to join us for the best barn dance this side of the Mississippi! Each year, the agency holds several fundraising events. We consider them “friendraising” events as well. Join us and learn more about how you can help provide vital services and supports to children and adults with all types of disabilities.    Hoedown 2017

http://advopps.org/hoedown

 

 

Disability in the news (mostly in New Jersey, the population we serve):

An extension of the New Jersey Community Care Waiver will let state keep spending Medicaid dollars on technology, transportation, and other support services.

The Christopher & Dana Reeve Foundation awards its second annual High-Impact Innovative Assistive Technology Grants.

The draft European Accessibility Act seeks to bring together “fragmented” national laws, while creating new rights enabling full access to services ranging from transport to cash dispensers.

Many mental health workers struggle with the stigma about their own issues.

 

 

For parents of a child with a disability (parenting):

Tips for parents: Helping your child with ADHD develop social skills.

CHADD’s weekly ADHD in the News

 

 

Special Education:

“The separate, unequal education of students with special needs.”

 

 

Advocacy and self-advocacy:

Here are 10 ways schools and parents can help students with ADHD.

 

 

Employment for people with disabilities:

Nearly all high school youth with autism spectrum disorder who participated in an intensive job skills program gained and maintained meaningful part-time employment after graduation, according to a forthcoming study by researchers at Virginia Commonwealth University.

 

 

Civil rights and accessibility:

Building compliance and access are basic human rights.

 

 

Informative, positive, noteworthy (or all three!):

A young woman with cerebral palsy launches an effort to raise money for research to help others with her condition.

This remarkable 11-year-old girl, born with a physical disability affecting her left arm, is driven to create prostheses and other useful inventions for people with disabilities, using 3-D printing.

 

 

The Arts and People with Disabilities

A noteworthy exhibit of autistic people communicating through their art will be on display at Monmouth University through May. One of the artists, Erin, is grateful for having her art as a means to communicate more effectively.

 

 

Disability awareness and appreciation:

Autistic people are often also empathetic, contrary to stereotypes.

Studying the heterogeneity of autism features over time can help us understand why some children do better or worse than expected.

Temple Grandin offered advice to artists with autism.

In a world that wants to say disability is a negative, (re)claiming this quality can be a radical notion.

A mom speaks: We need to stop thinking of autistic people as anything other than human.

 

 

Medical news – research:

Researchers have found a set of six simple questions are a reliable way for doctors to screen for attention-deficit/hyperactivity disorder in adults.

Research examines how prenatal maternal infections may affect genetic factors in autism spectrum disorder.

ADHD looks different in the cerebellums of girls and boys with the condition.

Are you up to date on ADHD research? Here are 20 questions and answers.

April: Fostering an Awareness, Appreciation, and Understanding of Autism

World Autism Awareness Day

Central to the U.N. Convention on the Rights of Persons with Disabilities (CRPD) is “respect for the inherent dignity, individual autonomy including the freedom to make one’s own choices, and independence of persons… and full and effective participation and inclusion in society” (Article 3). This concept is reflected in this year’s theme for World Autism Awareness Day, “Toward Autonomy and Self-Determination.”

autism_ribbon

In the U.S. and throughout the world, the rate of autism is high, affecting children and adults of all socioeconomic and ethnic groups. According to the U.N., “Appropriate support, accommodation, and acceptance of this neurological condition allow those on the spectrum to enjoy equal opportunity, and full and effective participation in society.”

On March 31, 2017, the U.N. held conference on multiple aspects of autism, Toward Autonomy and Self-Determination, which included the following:

In welcoming everyone, Cristina Gallach, U.N. Under-Secretary-General for Communications and Public Information, said “We come together to renew our commitment to raising awareness of the rights of persons with autism – to equal opportunity and full participation in society, on an equal basis, with other citizens. To achieve this inclusive society that we aspire to, we must… ensure that the fundamental rights enshrined in the CRPD are respected.” This is a right that has been recognized since the Universal Declaration of Human Rights was declared in 1948. Continued Ms. Gallach, “When [people with autism] enjoy equal opportunity for self-determination and autonomy, persons with autism will be empowered to make an even stronger positive impact on our shared future.”

U.N. Secretary-General Antonio Guterres could not be present, but he prepared a statement: “On this World Autism Awareness Day, let us play a part in changing attitudes toward persons with autism and in recognizing their rights as citizens who, like everyone else, are entitled to claim those rights and make decisions for their lives in accordance with their own will and preferences. Let us also renew our promise engraved in the 2030 Agenda for Sustainable Development to leave no one behind, and ensure that all people can contribute as active members to a peaceful and prosperous society.”

The keynote speaker, Simon Baron-Cohen, Director, Autism Research Centre, University of Cambridge, was gave an overview of the autism spectrum.

In regard to the “commitment to leave no one behind,” Jackie Pilgrim, a noted disability advocate spoke about dignity. In her work with NAMI Durham she spoke of her organization’s new 8-hour course for police and first-responders to replace the inadequate 1.5 hour course used previously, one for which they have shown “passion” to learn.

Barry Prizant, author of the landmark book Uniquely Human: A Different Way of Seeing Autism, summarized his philosophy:

Uniquely Human

  • De-pathologize autistic behavior (echolalia, stimming). It’s the way we deal with stress and self-regulate. They should not be repressed or otherwise “managed.”
  • Autism is not a tragedy, it can become one
  • Self-determination begins in early childhood. Children at an early age
  • Let’s look at ourselves.

Added Micheal John Carley. The best way to help is to examine ourselves and change the way we view people with autism.

An autism research and education organization, Autism Speaks, initiated the worldwide Light It Up Blue, campaign in its effort to raise autism awareness.    Among many in the autism community, both advocates and self-advocates, Autism Speaks is highly controversial, because that organization is seeking a cure, whereas many people prefer to see autism as simply another way of being, “different, not broken.”

 

National Autism Awareness Month

A ribbon made of multicolored puzzle pieces.  It has become one the most recognizable symbols of autism in the world.  The various colors reflect the many “faces” of autism, a condition often referred to as the autism spectrum disorder (ASD) because no two people with autism are alike.  (The cognitive abilities of people with ASD range from “nonverbal” to intellectually brilliant.)  The ribbon symbolizes solidarity and hope of a happy, fulfilling life for people with autism.  The puzzle pieces remind us that the condition and the people with it are still very much a mystery.

Autism Awareness Month first came to be some 25 years ago, when the Autism Society of America undertook an effort to promote autism awareness.  The primary objective was to “promote … inclusion and self-determination for all, and assure that each person with autism  is provided the opportunity to achieve the highest quality of life.”

 

Three short films that treat autism awareness and appreciation are worth noting:

  • “Make it Stop.” This is a brand-new awareness video to foster understanding of people with autism.
  •  “Talking in Pictures.”  This documentary dispels myths and stereotypes… at least as they apply to everyone with autism. “It’s not that we’re doing it wrong, it’s not that we’re autistic enough to fit in with the world’s idea of autism, it’s that the world’s idea of autism isn’t big enough to fit us all in!”
  • “Perfectly Normal,” is a film about Jordan, a man with Asperger’s, who discusses his everyday life, of which the New York Times publicized an important excerpt.

Furthermore, Sesame Street will debut Julia, a character with autism. This event will be covered in a later article.

 

And some noteworthy facts on autism:

  • In 2014, the U.S. Centers for Disease for Disease Control estimated the prevalence of autism as being 1 in 68 births.
  • Autism comes from the Greek autos” meaning “self.” Swiss psychiatrist Eugen Bleuler in 1910 used the New Latin term autismus to describe schizophrenic symptoms of children; US psychiatrist Leo Kanner first used the term autism in 1943.
  • Asperger’s syndrome is named after Austrian pediatrician Hans Asperger, who in 1944 first described the symptoms in children he was observing.

With a sincere effort of autism awareness, we will be able to treat this population with the dignity they deserve.

World Down Syndrome Day: Finding My Voice in My Community

Web page - March 21 is World Down Syndrome Day, 3/21 in recognition of Trisomy 21

March 21 is World Down Syndrome Day, 3/21 in recognition of Trisomy 21.

March 21. That’s Three twenty-one. These numbers are symbolic of the medical name for Down syndrome: trisomy 21. In humans, each cell normally has 23 pairs of chromosomes, which contain the person’s genetic makeup. In people with Down syndrome, the 21st chromosome has three rather than the usual two copies. The condition of there being three copies is known as trisomy; Down syndrome is the most common trisomy condition (please see our earlier blog post on Trisomy Awareness Month). Such seemingly tiny genetic variations can have a tremendous impact on a person. A prime example is the 23rd chromosome: females have two copies of the X chromosome and males have one X and one Y.

The theme for World Down Syndrome Day this year is #MyVoiceMyCommunity, “enabling people with Down syndrome to speak up, be heard, and influence government policy and action, to be fully included in the community.” In addition, Down Syndrome International will hold a conference on March 21 at the United Nations World Headquarters, New York. The conference and campaign will address four questions:

  • Why it is important for people with Down syndrome and their advocates to speak up and influence policy makers at all levels?
  • What key policies affect the lives of people with Down syndrome? How can these policies ensure full inclusion in society?
  • How can advocates become involved?
  • How can we empower people with Down syndrome, along with those supporting them, to advocate for themselves?

These are important questions we should ask of ourselves in serving our consumers with Down syndrome.

For those interested in following the World Down Syndrome Day Conference at the U.N., the event is being streamed. Information on the speakers, along with important background knowledge, is available on March 21.

Some portraits in Down syndrome

Book Lucky Few - A mom finds joy in adopting a daughter with Down syndrome

Heather Avis is a mom who, with her husband, adopted a little girl with Down Syndrome. In this book, released on WDSD, she tells of the joy she has found.

 

 

 

 

 

 

A German man with Down syndrome who survived the Holocaust is independentWalter, now 63, survived the Nazi genocide against persons with disabilities. Instead, he has found dignity in his independence in the community.

ZEIT Magazine, Nr. 37, 6. September 1996

 

 

 

Screen shot of photo essay documenting the beauty of Down syndrome

The Huffington Post recently featured a photographer who compiled a photo essay depicting the beauty of children with Down syndrome.

 

 

 

 

Charles de Gaulle adores his daughter, Anne with Down syndrome

Former Prime Minister took the time to enjoy a precious moment with his daughter, Anne, who had Down syndrome.

Trisomy: About That Extra Chromosome March Is Trisomy Awareness Month

Most of us are born with 23 pairs of chromosomes, for a total of 46. These chromosomes include DNA and other genetic building blocks. Some people, however, are born with a trisomy condition, that is, an extra chromosome. Trisomy can lead to a variety of problems, including physical and intellectual and developmental disabilities. March is Trisomy Awareness Month: the three most common trisomy conditions are as follows:

  • Trisomy 21. Most of us know this condition as Down syndrome, named after the
    down_syndrome_karyotype

    Karyotype for trisomy Down syndrome: Notice the three copies of chromosome 21. Courtesy: National Human Genome Research Institute – Human Genome Project

    British physician John, along with the familiar physical characteristics and facial features. Children with Down syndrome are at increased risk of cardiac (heart), endocrine (thyroid), gastrointestinal (digestive), auditory (hearing), and periodontal (gum) conditions. Many people who work among individuals with Down syndrome note their general happiness and positive outlook on life. However, these people may experience depression and anxiety in early adulthood and develop Alzheimer’s later in life.

  • Trisomy 18. Also known as Edwards syndrome, this is the second most common trisomy condition. Children born with Trisomy have severe intellectual disabilities that accompany microcephaly, an unusually small head (along with a small lower jaw). Many other internal and external physical anomalies are present as well. Half of infants die before their first week, and only 1 percent survive beyond their first year.
  • Trisomy 13. At times referred to as Patau syndrome, children with trisomy 13 have severe intellectual disabilities. As with trisomy 18, most infants born with trisomy have severe medical conditions and die very early in life and only 5 to 10 percent live beyond their first year.

Though trisomies 13, 18, and 21 are the most common, trisomy can occur with any chromosome. Most of those genetic anomalies, however, are not viable and result in miscarriage.

 

Also Worth Knowing

The risk of having a baby with a trisomy condition increases with the age of the mother, especially after her early 30s.

Statistically, the incidence of trisomy 21 (Down syndrome) is about 1 in 1,000 live births; for trisomy 18, this is about 1 in 5,000 live births, and for trisomy 13, about 1 in 10,000 to 21,700 live births (the median figure being 1 in 16,000 live births).

However, there are no precise figures on how common Down syndrome and other trisomy conditions are, as some parents elect not to carry a fetus that has been diagnosed as such to term. Such abortions are naturally a highly emotional issue, with strong viewpoints even within each of the Pro Choice, Pro Life, and disability advocacy communities.

Notable African American Women Make History, Despite Their Disabilities

harriet_tubman_1895-1          rosa-parks

fannie_lou_hamer_1964-08-22      Wilma Rudolph

 

February is Black History Month, and March is Women’s History Month. Many notable African American women made lasting contributions despite their disabilities. It is important, however, to “see the person, not the disability.” The late Australian comedienne and disability advocate coined the term inspiration porn in protest that people with disabilities should be objects of inspiration to make non-disabled people feel good. Four examples, from top to bottom and left to right, are Harriet Tubman (1822–1913), abolitionist known for her work on the Underground Railroad, Fannie Lou Hamer (1917–1977), civil rights activist, and Maya Angelou (1928–2014), laureate poet, and Wilma Rudolph (1940–1994), track and field Olympian.

Our Most Notable and Favorite Disability Articles for the Week Ending November 18, 2016

At Advancing Opportunities, we excel in providing residential and respite services to people of with all disabilities, along with advocacy and education services for parents and guardians and assistive technology support.  As a leader in the field, we are pleased to share our experience, knowledge, and expertise with the disability community through our social media outlets: Facebook, Google+, LinkedIn, and Pinterest.  In our Disability and Ability Highlights of the Week column, we will select the best of what we found and shared and present them.  Please click on the titles with embedded links to find the full article.

 

Please stop by our website, http://advopps.org/, and find out all we have to offer.  In addition, we are specialists in the area of assistive technology and offer a huge array of services; the Assistive Technology Center is New Jersey’s premier source of information and equipment.

new-jersey-national-guard-museum

An F-84 peeks through the memorial gate at the New Jersey National Guard Museum, dedicated to all service personnel who have served in the NJNG at home and overseas. Photo: Daniel L. Berek

 

 

Advancing Opportunities job announcement of the week:

Advancing Opportunities, Inc., has an immediate opening for a Human Resources Assistant.  The Human Resources Assistant will primarily be responsibilities for maintaining the HRIS database by entering all new hires, terminations, and changes, ensuring that all I-9 Forms and Driver’s abstracts are up-to-date and archiving personnel files for terminated employees. Performs other duties as from time to time are deemed appropriate.  Routinely deals with highly sensitive and confidential matters.

Required Skills and Abilities:

  • Good working knowledge of Microsoft Outlook, Word, and Excel are required.
  • Self-starter with integrity and confidence who strives to achieve.
  • Team player with well-developed interpersonal skills who is comfortable in a cross-functional environment.
  • Demonstrated aptitude to effectively learn and master new software systems
  • Excellent organizational skills to include prioritizing and managing tasks efficiently to meet established deadlines
  • Ability to maintain and ensure strict confidentiality and produce a high volume of work with a high degree of accuracy.
  • Strong customer service commitment. Must be able to relate well and cooperate with others to effectively coordinate activities and accomplish goals.
  • Solid problem solver that can identify and resolve problems in a timely manner.
  • Strong numerical ability and data entry skills and knowledge of HRIS
  • Demonstrated ability to perform well in a multi-task environment while maintaining a high level of attention to detail
  • Demonstrated knowledge of, or ability to learn, general HR policies, practices and procedures.

 

 

Advancing Opportunities News

Advancing Opportunities is planning a series of workshops for high school students with disabilities who are planning to earn a college degree or postsecondary certification. The college/carreer workshops will be held in 2017.

We believe feedback from parents like you will help us design and put into place a College/Career Institute that is most beneficial for students. The survey is available online. Thank you!

 

 

Disability in the news (mostly in New Jersey, the population we serve):

The New Jersey Self-Help Group Clearinghouse has a new Web page, a valuable source for people with disabilities in the state.

Autism grants help New Jersey families coordinate care.

The National Institute of Food and Agriculture (NIFA) grants focus on youth farm safety and agricultural careers for people with disabilities

 

 

Special education (including college for students with disability):

When are the lines between assistive technology and educational technology blurred?

A forward-thinking support program helps autistic students stay in college and succeed.

 

 

Civil rights and accessibility

Transportation options for people with developmental disabilities looking for community access remain limited.

 

Informative, positive, noteworthy (or all three!):

The kindness of a child, toward her brother with autism:  At 6, she’s already an excellent disability advocate!

An interesting journal article:  Are There Alternative Adaptive Strategies to Human Pro-sociality?  The role of collaborative morality in the emergence of personality variation and autistic traits

 

Advocacy and self-advocacy:

A disability advocate tells the story of how, after he became quadriplegic, of accepting and asking for help proved a difficult challenge.

“Courage, not weakness”  On accepting support.

 

People with a disability in the arts:

A New Jersey photographer with Asperger’s has a sharp eye.

 

Disability awareness and appreciation:

“I am real, I am human, and I feel!”  Because people with autism often have difficulty in expressing emotions doesn’t mean they lack empathy.

 

Medical news – research:

Sensory abnormalities could be among the first signs of autism risk — and a target for early treatment.

Sodium channel gene takes diverging paths in autism and epilepsy.